How it Feels While “Waiting for Answers”

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I first read about Riley in our local newspaper. Riley lives about 40 miles from where I live, her discovery of ovarian cancer at only 18 years old had to have been a nightmare beyond any we can imagine. Reading her blogs has and is an inspirational read. I know you'll be touched by this as I was. Read one of Riley's posts below.
Sharon Leigh

It has been about a week since my surgery and I am still in shock with everything that has happened since that first visit to the doctor… but especially at the miracles Dr. O’Hanlan made happen! I see such a huge difference in my stomach now that all the tumors are removed and although I don’t know the severity of my diagnosis yet, I am feeling so much better. Thank you so much to everyone who commented and left encouraging words. Reading all of your personal stories and battles with cancer has reminded me I’m not alone, that there is hope, and to stay strong even as this journey begins for me.

The fear I have has not gone away, due to so many unanswered questions, but reading and talking to people I can relate to really has helped. Although everyone’s support has made my outlook on this situation so much brighter, I still cannot believe this is my life…

It’s crazy to me to think that three short weeks ago I was living my life just like any other teenage girl and now I am here desperately waiting for results to tell me how bad my CANCER is. It seems so unreal. I remember when I first heard the doctor say the word “Cancer” in the same sentence as my name. My life flashed before my eyes and I did not know what to do next. I realize now that ignoring it and pretending this is all a dream that I will soon wake up from is so much easier than facing the truth, but I understand that I do have to come to terms with this to fight it. Often times I find myself wondering why this had to happen to me and why my family was chosen to go through this, but at the same time I am happy It was me who was chosen to go into this war because I could not bare to see one of my siblings or friends go through all of this. I am staying positive and I am keeping my smile on my face, but it is still so hard to sit here showered with flowers and “Get well soon” cards knowing I am fighting a battle that so many people haven’t been able to win, and that scares me. It feels so good to get all this love, but breaks my heart that cancer is the reason why.

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Wednesday, November 22, 2017
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Ovarian Cancer

This year in America Ovarian cancer will strike an estimated 25,500 women, and kill more than 14,000! Ovarian cancer remains the deadliest gynecologic malignancy and the fifth leading cause of cancer deaths among women in the United States.

What’s the problem? There is no early detector for Ovarian Cancer!

It’s been 25 years since a test for ovarian cancer was introduced to help diagnose this disease.
Should this get your attention, YES!
Should you do something about it? Yes!

I sailed along in life eating well, working out regularly, I didn’t smoke, didn’t have a drinking problem, only the occasional glass of wine. When one day I was told you have cancer. I have what! Wake up Sharon you have ovarian cancer.

It was found in the first stage, why? the early detection exams listed below found my cancer. I grant this there was a history in my family as my sister died from ovarian cancer. My question has always been this, I was examined for eight years before this was found.

Why can’t these tests be used as a regular, early detection tool for the discovery. All of the reports indicate that there is not substantial evidence to back this up. I am not an MD I am just a person who wants to do something about women suffering and dying unnecessarily. These women are not the only ones suffering, their family members are with them every step of the journey.

1a blood test of the serum CA 125 level (CA 125 is a high level of protein in the body)

2 transvaginal ultrasonography (TVU)

3 a pelvic exam

There is a new biomarker ...that has not been approved by the Food and Drug Administration for making a diagnosis of Ovarian cancer but only for monitoring the recurrence and progression of epithelial ovarian cancer. HE4 it will improve the ability to properly treat women in whom ovarian cancer has been diagnosed. The hope is it will be used in the future for an actual early detection in conjunction with the CA 125 serum.

Lets hope and pray that soon there will be the early detection break through we have been waiting for and end this nightmare.

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